I'm so tired of hats and such. I'm ready to have hair again, but I guess I'm just going to have to wait on that. My eyes water a lot and my make-up rubs off. And if I wear eye shadow or mascara, I get swollen eye lids, like sties (sp). Ugh. The no hair thing and the hat thing would be tons better if I could wear make-up!!!
Treatment tomorrow, starting the Taxotere. Nurse says mostly people just report more fatigue. The drug that goes with it, Decadron, they say can make you feel wired, but I took it 3 hrs ago and don't really feel "wired". Was hoping for "so hyper that I go home and organize for 3 hrs".
Brad has been at his dad's since last Tuesday and I'm getting a little lonely. He decided to stay until Sunday evening. Funny how they drive you nuts when they're home, but how much you miss them when they aren't around.
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Hi Anita,
I wanted to get your input on some things. I have to do another course of chemo, and the doctor is putting me on Taxotere, w/ Decadron. The reading I've done makes them both sound dreadful. I get the feeling I should anticipate being a lot sicker than I have been w/ the A/C. Decadron sounds pretty bad itself, so Taxotere must be pretty bad to warrant it!
I wanted to get your take on Taxotere and Decadron. Do you see patients being sicker on this? Am I crazy to try to work through this? The nurses keep asking if I need to go on disability, but I don't know. I'm fine (fine enough to work) one week and sick the next.
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(from Anita)
In my experience the Taxotere is much easier to tolerate than theAdriamycin and Cytoxan. The side effects I see are mainly lowering blood counts and fatigue. Some patients may have some muscle aching a few days after the treatment but it only lasts a few days. Most people tolerate this chemo without nausea. The most important thing is to drink plenty of fluids. The decadron is only to help prevent swelling and seems to be tolerated pretty well. The main side effects I see with it are increased appetite and nervousness. Just plan your housework so you can get it all done after the decadron. Most of the patients feel this chemo is much easier to tolerate. You should be able to work if that is what you want to do.
Love You, Anita
Showing posts with label hair. Show all posts
Showing posts with label hair. Show all posts
Sunday, August 10, 2008
Friday, May 26, 2006
My hair is falling out in piles!! It stated a bit yesterday, and today...ugh...I wore a scarf around my head, cut the back shorter so it wouldn't hurt and sprayed the top really hard so it wouldn't move and fall out all over all day.
Randy thought I was kidding when I told him I might be bald by Tuesday...
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Randy thought I was kidding when I told him I might be bald by Tuesday...
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Wednesday, April 26, 2006 - Replies
HAHA! That IS a bonus!
Well, I'm glad that you explained all that was good news, otherwise I'd be very confused. : ) But, I'm glad things are looking positive! What is the port all about? The chemo has to have its own orifice? HAHA! Can you tell I'm loopy?? I'm not sure I like hairless. How about fur-free? Heck, you might even get a contract with PETA that way!! I guess if you have to be hairless, or fur-free, summer is the best time to do it. Just don't forget the sunscreen!!
If tan and thin went with it, I'd shave my head. If Kevin wouldn't divorce me over it, I'd shave my head in solidarity with you!!
Love you much!
Mary
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If you shaved your head, I'D divorce you! I love your hair...don't ever cut it.
Hair loss is temporary. I'm not overly concerned about it. Fur-free...good one. Stubble-free all summer. Brazilian wax w/out the wax. No plucking stray facial whiskers. I wish that part were permanent.
Orifice...LOL!! I can have a port, or I can be re-stuck everytime they need to have a needle in me. I don't do well with needles. Everyone I've spoken to recommends the port.
Shelli
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HAHAHA! Please don't divorce me!! Luckily, I have no interest in cutting it! There are definitely some advantages to losing the hair -- and I'm with you; too bad some of them aren't permanent!
Yuck, I'm no good with needles either. The port sounds like a good plan!!
Mary
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Wow! What good news. I am surprised ..............only 4 treatments. Look into the port thing.................you have to leave it in for a year is my understanding and they are a nuisance at best and can be painful in itself.
Four sticks maybe preferable. I'll try to call Anita Jo and ask her. She works for an onocologist.
Love,
Gaile
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Hello dear niece,
I am glad to sense your sense of humor in all this. It will help see you through. I put your name in the temple again tonight and I will keep it there. I'm looking forward to seeing everyone on the 19th and 20th for the weddings. I love you.
Bonnie
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Dear Shelli,
If you are that phobic, you have definitely made the correct decision. They have a port that is for short term chemo. I emailed Anita, but haven't heard back. I ask a friend here that works in the field. She said that there are two kinds of ports. Childhood pain is a terrible legacy. I am so sorry about what you went through. I do know about "triggers." It sounds like you have a handle on what to expect.
Love to you,
Gaile
================
The thing that I am the most concerned about as a nurse is patient safety. I am assuming that she will receive Adriamycin. If this drug leaks out of the vein, which happens, It will cause the tissue to necrose. It is a very uncomfortable thing for nurses with experience to give into a vein. Even with the best of technique leaks happen. I had it happen oncewith a port. Luckily, I knew what to do when it happened and only a traceof chemo had been given. She developed a chemical burn but no sloughing of tissue and etc. I know it is another surgery but as a nurse I would get one myself. I would like Shelly to have my email address in case she has questions and etc.
Love,
Anita
Well, I'm glad that you explained all that was good news, otherwise I'd be very confused. : ) But, I'm glad things are looking positive! What is the port all about? The chemo has to have its own orifice? HAHA! Can you tell I'm loopy?? I'm not sure I like hairless. How about fur-free? Heck, you might even get a contract with PETA that way!! I guess if you have to be hairless, or fur-free, summer is the best time to do it. Just don't forget the sunscreen!!
If tan and thin went with it, I'd shave my head. If Kevin wouldn't divorce me over it, I'd shave my head in solidarity with you!!
Love you much!
Mary
===============
If you shaved your head, I'D divorce you! I love your hair...don't ever cut it.
Hair loss is temporary. I'm not overly concerned about it. Fur-free...good one. Stubble-free all summer. Brazilian wax w/out the wax. No plucking stray facial whiskers. I wish that part were permanent.
Orifice...LOL!! I can have a port, or I can be re-stuck everytime they need to have a needle in me. I don't do well with needles. Everyone I've spoken to recommends the port.
Shelli
================
HAHAHA! Please don't divorce me!! Luckily, I have no interest in cutting it! There are definitely some advantages to losing the hair -- and I'm with you; too bad some of them aren't permanent!
Yuck, I'm no good with needles either. The port sounds like a good plan!!
Mary
================
Wow! What good news. I am surprised ..............only 4 treatments. Look into the port thing.................you have to leave it in for a year is my understanding and they are a nuisance at best and can be painful in itself.
Four sticks maybe preferable. I'll try to call Anita Jo and ask her. She works for an onocologist.
Love,
Gaile
================
Hello dear niece,
I am glad to sense your sense of humor in all this. It will help see you through. I put your name in the temple again tonight and I will keep it there. I'm looking forward to seeing everyone on the 19th and 20th for the weddings. I love you.
Bonnie
===============
Dear Shelli,
If you are that phobic, you have definitely made the correct decision. They have a port that is for short term chemo. I emailed Anita, but haven't heard back. I ask a friend here that works in the field. She said that there are two kinds of ports. Childhood pain is a terrible legacy. I am so sorry about what you went through. I do know about "triggers." It sounds like you have a handle on what to expect.
Love to you,
Gaile
================
The thing that I am the most concerned about as a nurse is patient safety. I am assuming that she will receive Adriamycin. If this drug leaks out of the vein, which happens, It will cause the tissue to necrose. It is a very uncomfortable thing for nurses with experience to give into a vein. Even with the best of technique leaks happen. I had it happen oncewith a port. Luckily, I knew what to do when it happened and only a traceof chemo had been given. She developed a chemical burn but no sloughing of tissue and etc. I know it is another surgery but as a nurse I would get one myself. I would like Shelly to have my email address in case she has questions and etc.
Love,
Anita
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